Friday, June 25, 2010

Surgery day

The hospital's fasting instructions for babies stated that no milk was to be given after 2am, so I set my alarm for 1:45am. Woke Elizabeth up and made up a 150mL bottle. She took 100mL then promptly fell asleep. I vainly tried to get her to drink more but she was completely milk drunk. I set my alarm for 5:45 because we needed to leave by 6:35 at the latest.

The next thing I knew, DH was yelling down the corridor to his brother, "What time is it?" "Quarter past six." CRAP! BIL made us poached eggs on toast, which were wolfed down in record time. I had to choose between brushing my teeth and drinking coffee, and the coffee won. We got out the door at 6:35 and walked up to the Mater Children's Hospital reception at precisely 6:45. Whew!

We were sent to the waiting room of the children's day surgery. We were told Elizabeth would be the second case of the day, after a big case which was going to take a while. So the 8:30 surgery time we were expecting was more likely to be 11:00.

At around 9am, Elizabeth started getting a bit shirty, so the nurse rang the anaesthetist and asked if she could have some juice. She was allowed 35 mL but didn't want a bar of it.

I started chatting to a mum with a 10 year old boy who had a repaired cleft (they're easy to spot once you've seen a few!). He was there to have his bone graft operation. His mum was pregnant with her 5th child- she has 4 boys already, two of whom were cleft bubs. She was so down to earth and we had a great chat.

The nurse told us if we wanted to go get a coffee, we needed to be back by 11am. DH went and had brekkie downstairs around 9:30 (E was asleep in the sling), then I went and did the same. 11:00 came and the anaesthetist came and explained what was going to happen. She said that the case before us was about half finished. That meant we still had ages to wait.

Elizabeth was very hungry but was pretty happy to suck on her dummy and be carried in her sling. I can't remember how many times I walked up and down that damn corridor. She fell asleep a total of 3 times during the long wait.



Finally, at 1pm, I made a coffee and said to DH, "I bet they'll come get us now that I've made a coffee". Sure enough, before I'd even taken my first sip, a nurse came to get us.

We went into the pre-op foyer and Elizabeth was very upset at this point. She must have sensed what was coming. After about 3 minutes, a couple of nurses and the anaesthetist came out and said it was time to say goodbye. I tried to be strong but it was so hard. I held my baby in front of my face and said, "Goodbye sweetheart, you're going to get a new face. I love you". I then handed her to DH but didn't hear what he said because I was crying. Then they whisked her away and I stared at the doors that swung shut after them. DH and I held eachother for a few minutes and then I went to express because my boobs were aching.

We walked to South Bank and got some lunch. We were both in pretty good spirits. The worst part was over- the dreaded waiting with a starving baby. Now all we had to do was wait for the surgeon to do his work.

We went and waited in the parents' lounge. After about 40 minutes, the phone rang. One of the mums answered it and called out, "Elizabeth's parents?" I bounded to the phone and the lady on the other end said that we could go to recovery and get our daughter. We were both so excited, we practically skipped down the hallway. I pressed the intercom button outside recovery and told them who we were. We went in and a nurse said, "Elizabeth [not our surname]?" And I said, "No, Elizabeth [our surname]". "Oh", she said, "We meant the other one". So we had to go backwith our tails between our legs.

About 20 minutes later one of the surgeons came in to tell us that the operation was over and that it had gone very well. He said that she should be ready in about half an hour. Of course, it was closer to an hour.

When the call finally came, DH said he needed to pee. When he came out I grabbed his hand and we practically ran to Recovery. We walked in and a nurse with a big grin ws beckoning us over.

When we first saw our baby, I gasped in shock, amazement and surprise. I knew that she would never look the same again, but I was not prepared for how different she looked. Her whole face seemed to have been transformed. Gone was the wide mouth and round face- now her mouth was a tiny little rosebud, and her face seemed more heart-shaped. She looked so tiny and innocent in the big bed with her arms in splints.



We went up to the ward and she opened her little eyes tentatively. She was emitting little groaning noises like she was in pain. When she cried, it was the saddest little hoarse cry and sounded nothing like my baby.

After DH left, I sat and stared at her for ages. I just wanted to pick her up and cuddle her but was scared of all the tubes. She had her first feed around 6pm. The nurse held up her head while I squeezed the milk in using a squeezy bottle and pipette. It took her about 30 minutes but she had the whole 100mL. The next feed after that she took about 70mL in about an hour, and it went downhill from there. We had a pretty crappy night- she woke in pain every 2 hours and it took upwards of an hour to get tiny amounts of milk into her.

I was totally exhausted by 5am and fell asleep as soon as she'd fed. When I woke, it was 9am. I was in such a deep sleep that the nurse had to wake me because E had been crying for ages. She told me that the surgeon had been to see us. I was annoyed because I really wanted to talk to him. The nurse said that he'd told her that E could feed using her regular teat after the tough time she'd had that night.

Her feeding became marginally better throughout the day, but not good enough for us to go home. Her IV fluid was reduced by half in an attempt to get her feeding more, and her morphine drip was turned off and she was given Panadol every 4 hours.

This is her nasal stent, without the tape holding it in place. It is to be worn for 3 months and will shape her nostrils.

That night, at 10:30 she had been crying for an hour and I was exhausted. The nurse came in and asked if I wanted her to take E so I could sleep. I handed her over, hopped into bed and promptly fell asleep. The next thing I knew, it was 2:30 am. The nurse had E and I said, "You haven't had her this whole time, have you?" and she said that E had just woken up. I gave her a feed, expressed, and went back to sleep at 3:30 then woke at 7:30. It was so good to get a good night's sleep.

One of the plastic surgeons came around 8:30 and said that we could go home, so I rang DH and spent the morning waiting for him. My family arrived around 10:45 and I bid the staff goodbye and thanked them for being so lovely and helpful during our stay.

Now Elizabeth is getting used to her new face, and so are we.

Monday, June 14, 2010

One week to go

E will be in surgery this time next week! Argh!

Here is a list of things that I need to pack. Please comment if you think there's anything I've forgotten!

Elizabeth
3x Wondersuits
3x singlets
3x onesies
Sleeping bag
Outfit to go home in
Nappies and wipes
Feeding equipment (2x squeezy bottles, pipettes)
Karicare thickener (need to buy this)
Arm splints
Sling
Bottle brush

Me
PJs
Bra, undies, 3 pairs breastpads
Tracksuit
Slippers
Comfy shoes
2x tops (will wear jeans there)
Mobile phone & charger
Wallet
Books
Breastpump and milk storage bags
Toothbrush, toothpaste, comb, shampoo & conditioner, pills
Pillow
Mug
Ipod
Hand cream

Anyone mind if I freak out now?

Saturday, June 5, 2010

Our beautiful girl


Our little girl is growing so very fast! It's so hard to believe that a little under 4 months ago, I could hold her on one of my forearms. She has really chunked out and is probably around 6kg now. In the last week or so, she has really been responding to human interaction- if anyone talks or makes funny faces to her, she grins and chuckles. It's so cute!


She is becoming much more settled. She still barely sleeps during the day, but is a great sleeper at nighttime so I can't complain. She's usually asleep by 9pm and sleeps until 5 or 6am, sometimes later!



Her surgery is one month from tomorrow. I haven't started worrying about it yet, but I know I'll be shit scared.

Wednesday, June 2, 2010

Child care

About a month ago, I went driving around Mudgeeraba looking for a C&K child care centre that I knew was around there somewhere, with the intention of speaking to the staff about putting Jimmy into daycare next year for a couple of days a week.

For some reason, the centre wasn't on the street that the website said it was. On my way back home, I spotted a Montessori one and thought, "What the heck? I may as well have a look". I emerged 45 mintues later, not only having decided that this was the centre for us, but that I would like to send Jimmy right now, and not next year as I'd originally planned.

The staff were fantastic, and watching them interact with the children was really interesting. It was great to observe the children being responsible for everything from washing their own cup (even the tiny toddlers) to putting their 'work' back to where they got it from.

Over the next couple of weeks, Jimmy and I visited 3 times. The first time, we stayed for about 40 minutes. He had some play time outside and as is his way, he did his own thing and didn't really pay any attention to the other children. Then it was time for morning tea. He finished his before everybody else and then decided it was time to get off his chair. The teacher told him that he needed to sit at the table until his friends had finished and he wasn't too happy about that! Afterwards, the teacher showed him how to wash his cup, which he enjoyed. Then it was 'circle time'- sitting in a circle and singing songs, talking about colours, numbers, etc.

The second time he was in a bit of a funny mood. I stayed outside with him for a while then went inside and watched him from behind the glass door. I thought things were going great until he looked up and realised I wasn't with him...the next thing I knew, a red, distressed face was pressed up against the door, crying, "Want a mummy cuddlllllllllle!" :( That was the end of that visit.

The third time, I set him up with an activity outside and told the teacher I was going nextdoor to Aldi. I gave Jimmy a kiss and he started crying as soon as I walked away. The teacher picked him up and walked around with him. As I walked to Aldi, I looked through the fence and saw he was still in her arms. I came back ten minutes later and he was sitting in the lap of another teacher, sobbing "Mummy, I want mummy." I ran to him and scooped him up and hugged him so hard.

The week after that I had planned to go for another visit, but suddenly I decided that neither he nor I are ready for this. Everyone has been telling me, "Oh, they all cry, but they get used to it." Well, I'm not ready to 'force' him to get used to it. In my opinion, he is too little and too attached to his mummy. I don't NEED to send him. I only wanted to send him because Elizabeth takes up so much of my time and I feel really bad that Jimmy has to just bum around watching TV or playing on his own for most of the day. Thankfully, E seems to be getting less needy, and I've been making an effort to go to playdates and take Jimmy oustide at least twice a day.

In a couple of months, we will go back to the centre and have a few more visits and then see what happens.

Monday, May 31, 2010

Title-less

Had a pretty good day today. I managed to get two loads of washing done by 9:30 and had a couple of plays outside with Jimmy before a good friend turned up with her little boy. I haven't seen them for quite a while so it was great to catch up. She spoiled us rotten- yummy chockies and a bunch of lillies for me, a balloon and wooden puzzle for Jimmy, and a beautiful Seed cardi and hair clip for Elizabeth. The boys played together really well and it was lovely to sit out on the deck. I really do love the Gold Coast at this time of the year, and have vowed to spend more time outside, even if our backyard does resemble Darwin after it was hit by Cyclone Tracy.

In other news, I went out on Friday night. On the town. Yes, you read correctly.
The Broadbeach Blues Festival was on over the weekend and my good friend A asked if I wanted to go with her. I almost piked out because I was feeling sorry for myself, and I'm so glad I didn't.
It was nice to tart myself up and break in my brand new leather boots.
We walked around Broadbeach listening to all the bands and found a great one in a tiny little club that was absolutely packed full of people. It was an 8-piece band complete with tumpet, sax and harmonica. We couldn't see the singer over everyone's heads as he was sitting at the keyboard, but he had an awesome blues voice. When he stood up at the end his identity was revealed- Wiley Reed. He's quite a big name in Australian blues and I feel very priveleged to have seen him play. The poor old dear was attached to his dialysis machine for the whole gig. Now that's dedication to one's art!

I had a chat to the bassist and saxophonist. It was really good to talk music instead of babies for a change! The sax player thought I was trying to chat him up until he realised I knew what I was talking about.

Elizabeth has been a very happy little girl today. She has suddenly (in the last 5 or so days) started smiling heaps and making adorable cooing noises. She is so beautiful!

I have decided that after E's facial surgery, I am going to dedicate myself to establishing breastfeeding. I know it will be very hard, but I owe it to myself and my daughter to give it a good Aussie go. I'm thinking I might enlist the help of a private lactation consultant. I've tried feeding E a couple of times but she isn't really interested. I feel guilty that I didn't persevere in those first few weeks, but at the time I was focussing on getting her bulked up and it was just easier to feed her expressed milk.

Gotta go now, Desperate Housewives is on!

Wednesday, May 26, 2010

No whinging today

I have had some fairly serious stuff going on in my life for the last couple of days, but writing about it will take a year so I'm just going to tell you about my day.

First of all, today is what would have been my dad's 70th birthday. What a huge party he would have had. I have been searching like crazy for a photo taken at his 60th party of him, my sister and I but I can't find it anywhere. He looks so happy and healthy in it. I will have to find it and frame it because that is the way I want to remember him, not as the weak old man cruelly struck down by cancer at 65 years of age. It's quite scary how quickly an illness can age someone.

Today I dropped the kids of at the in-laws' house and headed off to Robina Town Centre with strict instructions to take my time and not hurry back. I got a haircut, posted a package, banked a cheque, had a coffee and two enormous scones with jam and cream, and did the grocery shopping. On the way to Woolworths I decided to look in a shoe store and saw some really nice brown boots that were on sale. I went inside to ask for my size and then spotted another (more expensive) pair and thought I may as well try them on too. I decided to buy the more expensive ones because I've never had leather boots and figure I deserve them. I've never spent that much on shoes ($160 marked down to $96) and I felt kind of guilty, but then I remembered that DH always tells me to buy whatever I want and I never do. So there. I bought leather boots and they're hot and I can't wait to wear them with my skinny jeans.

After I picked up the kids, I came home and put Jimmy to bed, gave E a bottle and popped her in the swing,and had a nice bowl of soup that my MIL made for me. My god, that woman is a life saver. Then I did heaps of housework and even had time to sort out and take photos of baby clothes to sell. It was a good day.

Tuesday, May 4, 2010

Update


As you could probably tell, I wasn't in a great place when I last posted. I'm pleased to report that things are much better, today anyway.

Having an extremely unsettled baby makes a mum feel like she's on an emotional roller coaster. Some days I just feel so helpless and frustrated that I have terrible thoughts...like giving E back to the hospital and other things that make me feel really ashamed. And then other days are great- she'll gaze up at me and make cute little noises and kick her legs around and just be so cute that my heart feels like it will burst.

I've been very impatient with Jimmy and my stepdaughter and I feel crap about it so I have to make a conscious effort to chill out. It doesn't help that Jimmy is recovering from croup and has been fairly miserable.

We met Elizabeth's surgeon a couple of weeks ago and her operation is scheduled for the 6th of July. I'm not really nervous yet but I know I will be. The surgeon was really nice and didn't speak to us in 'medicalish' which was good. We were happy to find out that E won'tneed the 2nd operation, the palate repair, since her palate cleft really only goes through her gum. She will need a bone graft when she's 8-10 years old.

Today we went to see an orthodontist at the Royal Children's Hospital to find out about having E fitted with a plate, on the surgeon's advice. The lady was really nice and gave us heaps of information and we all decided that having a plate would be very benficial for our daughter. She had to have a mould made and handled it really well, even when the first one didn't work and it had to be done again. The plate is being made this week and she's having it fitted next Tuesday. I hope that the plate doesn't bother her too much.